Colin's EEG

Part of getting a diagnosis, brings along all the "further" testing to rule any medical problems out. First Up: The EEG. :-( We had to keep Colin up as late as we could the night prior and wake him early. In order to try to get the worst night sleep possible, I figured I'd have him sleep on the couch, and he would be up later too, since we'd be up,watching TV and moving around. keep in mind, bedtime for these two guys is typically 7:30 on a rough behavior day and 8:00 on a typical day. So we let Caden set up the DVD player and they sat together to watch {titanic} of course.

Around 9 Colin kept asking if he could put his head down. I said Ok, but do what you have to stay awake! 9:15 the movie ended, so we took our turns laying down with Caden. By the time we were done and back in the living room (10 minutes) Colin was OUT cold :( I was bummed. I tried to wake him, but it was a no go.

He ended up in bed with us around 2am. We had our alarm set for 3:30/4:00 to get him up and keep him up, however, being tired Mom & dad, we slept through that too, and didn't wake until 5:00! So, Colin ended up with a typical full night sleep anyway :( Which didn't help the test process at all.

We knew he wouldn't take this well. First we got there, and there were about 7 people in waiting room. He wouldn't even go in the waiting room because of the amount of people. Poor guy. Once they finally called him, they took us the back way. Opening a back door, and having us walk around the hall, so he wouldn't have to walk by the people in the waiting room. Nice of them, but so sad that he gets that anxious that he can't go into a full room. My poor kiddo. They take us to a room, that is smaller then my tiny cube at work.

Then, along comes the battle of getting him onto the hospital bed. *whew* It took a good 10 minutes, and I finally went up there and laid down first and had Mike hand him to me. Kicking. Screaming. Crying. Yelling. Poor Colin!

Then he had to lay down! More fighting. THEN they had to swab his head with the sticky stuff to make the wire stick. OMG. End of the world. My heart was breaking. You have NO idea the fighting we had to do. In the end, we had to wrap him in a sheet, up to his neck. Hold it tight around around him, so he couldn't move his body. I was practically laying on the upper 1/2 of his body (remember, I am BIG and heavy) and Mike had to hold his legs down. I had to hold his head (by the chin) down so the wires could reach. Nothing consoled this poor boy. 35 or so mins later I was sweating, my shirt was ripped at the seem from him pulling and I was ready for a nap, the wires were in place. Here's the kicker. The new way they do this, is the test is only 30 minutes long. They expect this child, who is now SO worked up and anxious to relax enough to go to sleep and get a good reading. Are you kidding me? Needless to say, he never fell asleep. He for sure would have, had we had another 30 minutes. He was JUST calming down, as you'll see in the picture below.

These were taken AFTER the test. We couldn't take any before the end. After the 3 minutes of light flashing in his eyes. (which is why the eyes are closed in the one) you can see how red, and sweaty is was from fighting us.

He wouldn't even turn his head, for fear that she would have to touch it again. It makes me upset that we go through all of that, for just 30 mins.

After we get the wrapping off, he is able to sit up, so she can take the rest of the wires off. He did great for this part.

then she went to get water to wash the gunk out of his hair, and he said, That was fun!

WHAT???!!!

LOL

So for being such a brave boy, Colin got to pick a new animal from the hospital gift shop.

Next up? He still needs an EKG and blood work. :-( Anyone want to volunteer to take him? I am not scheduling them anytime soon. This little guy needs a break.

I am however, super proud of him. These 2 boys of ours have gone though more testing in their short years, then some adults have ever had to. In the end, It can only make them stronger.